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Participant Materials
Completing Individual Units
Foundations Training
Introduction to the Training
Unit 1: Community-Engaged Scientific Research
Unit 1 Overview
Topic 1.1: What Is Scientific Research?
Topic 1.2: What is community-engaged research?
Unit 2: History of Scientific Research with People and Rules
Unit 2 Overview
Topic 2.1: History of Research with People
Topic 2.2: Rules for Scientific Research with People
Topic 2.3: Vulnerability
Topic 2.4: Research with Health Records
Topic 2.5: Research with Educational Records
Topic 2.6: Research with Food, Dietary Supplements, Medications, and Medical Devices
Unit 3: Getting people involved in research
Unit 3 Overview
Topic 3.1: Recruitment: Finding People to be in a Research Study
Topic 3.2: Finding Research Participants through Other People
Topic 3.3: Consent: Working with People as they Make Decisions about Being in Research
Topic 3.4: Consent Capacity
Topic 3.5: Research with Children
Topic 3.6: Assent: Working with Guardians
Unit 4: Keeping Research Participants Safe
Unit 4 Overview
Topic 4.1: Risks and Safeguards
Topic 4.2 Privacy and Confidentiality
Topic 4.3: Breaking Confidentiality and Mandatory Reporting
Unit 5: Trying out new treatments medicines, and programs
Unit 5 Overview
Topic 5.1: Why we do Clinical Trials
Topic 5.2: Risks in Clinical Trials
Topic 5.3: Taking Care of Participants in Clinical Trials
Topic 5.4: Data Safety Monitoring Boards or Committees
Topic 5.5: Return of Personal Health Results to Participants
Topic 5.6: Individuals with Impaired Decision-Making Capacity in Clinical Research
Unit 6: Community Research Partner Rights
Unit 6 Overview
Topic 6.1: Keeping Community Research Partners Safe
Topic 6.2: Being an Author and Sharing Findings
Topic 6.3: Wrap Up
Refresher Training
Introduction
Unit 1: Community-Engaged Scientific Research
Unit 1 Overview
Certification
Unit 6: Community Research Partner Rights and Responsibilities
Topic 6.2.1: Using artificial intelligence, authorship and sharing findings
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