Community engaged research involves a partnership between researchers and community members and/or community-based organizations to design and carry out scientific research. Community members are research partners, not research participants. Partners may or may not be university employees. Research partners bring expertise from lived experience. Community-engaged research enhances trust and representative samples and improves knowledge translation and implementation of findings.
Patient-centered comparative clinical effectiveness research studies two or more different healthcare options to understand what works best for different people in different circumstances. Patient-centered comparative clinical effectiveness research aims to provide reliable, useful information to help people make informed healthcare decisions and improve patient care and outcomes.
Research Ethics for All is for community research partners who are doing patient-centered research.
The training is a good fit for community research partners who are working with a project leader who has an advanced scientific degree, certification in research ethics, and experience doing patient-centered research with people with developmental disabilities.
Research Ethics for All is for community research partners who are engaged in human subjects research. For more information on whether community research partner responsibilities are likely to require this training, see Engagement in Research and Researcher Training Federal Regulations and Accreditation Standards.
Research Ethics for All can also be used by people who are interested in learning about ethical issues in doing patient-centered research.
Learn about the intended audience for Research Ethics for All.
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When community research partners complete Research Ethics for All, they can complete the Certification Activities to earn a certificate (initial or renewal).
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Research Ethics for All includes a refresher course and certification renewal. Project leaders should review their organizational policies for training renewal to determine when community research partners should renew their Research Ethics for All training.
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If community research partners will not be engaged in human subjects activities, there is the option to select units or components of units most appropriate to their roles. Click here [insert link] to learn more about this option.
In many cases, even community research partners who are not engaged in human subjects activities may benefit from the full Research Ethics for All training to support their ability to advise on research activities and support professional development.
Visit the Prepare to Teach page to learn about how to teach Research Ethics for All.
Or download our Quickstart Guide.
Research Ethics for All was designed to be accessible to adults with developmental disabilities. In addition, training facilitators can make accommodations to support optimal learning. Community research partners may know a lot about the accommodations they need to optimize their engagement and learning. Some accommodation tips are:
Depending on the responsibilities of community research partners, you may not need approval to use Research Ethics for All .
If you want to engage community research partners in recruitment, consent, data collection, and working with individually identifiable data (activities that would engage them in human subjects research), you will likely need approval from your organization to use Research Ethics for All as an appropriate research ethics educational program for community research partners.
You can pursue approval to use Research Ethics for All for a single IRB protocol or as an available research ethics education program for community research partners at your organization.
Learn more about pursuing IRB approval for Research Ethics for All.
Research Ethics for All is also available via the CITI Program to subscribers of the Human Subjects Research (HSR) series subscribers. The university office that manages access to CITI educational programs can add Research Ethics for All via the CITI order form (available via the ADMIN button).
Reach out to the creators of Research Ethics for All, Katherine McDonald and Ariel Schwartz, by contacting us.